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AIMI Dataset Index

A community-driven resource of health AI datasets for machine learning in healthcare

 

PEDsnet

PEDSnet is a national network that integrates hospitals, healthcare institutions, researchers, clinicians, and the broader pediatric community. As a multi-disciplinary platform, its emphasis is on observational research and clinical trials within various children's hospital systems. Established in 2009, the network has a longitudinal data set that spans a wide range of pediatric diseases and specialties. The data indicates that more than 10,000 children are categorized under each of the 675 distinct diagnoses, with an additional 2,278 diagnoses impacting at least 1,000 children. The PEDSnet database is Electronic Health Records (EHR), rich including demographic information, diagnoses, lab results, procedures, medications, outpatient ED visits, inpatient visits, and payer plans.

Data Source: Collaborative (data linkage and harmonization)
Number of Sources: Multiple
Population #: 13,090,778
Population Unit: pediatric
Population Representation: Seizure Disorder, Asthma, Type 1 Diabetes, Inflammatory Bowel Disease (Ulcerative Colitis + Crohn's Disease), Duchenne Muscular Dystrophy, Sickle Cell Anemia, Cystic Fibrosis, Chronic Granulomatous Disease, Appendicitis, Lyme Disease, Juvenile Idiopathic Arthritis, Immune Thrombocytopenic Purpura, Bronchopulmonary Dysplasia of Newborn, Brain Tumor, and Leukemia + Lymphoma.
Longitudinal Observations: Yes
Accessibility: Apply for access
Permitted Uses: Non-commercial only
Fees: Free
Data Types: EHR
Funding Source: PCORI
Documentation url: View Documentation »
Main url: Visit site »